In a powerful profile of his son Jamie, a young man with Down syndrome, Michael Bérubé explores some of the key challenges that those with disabilities face when trying to enter the workforce:
The first time I talked to Jamie about getting a job, he was only 13. But I thought it was a good idea to prepare him, gradually, for the world that would await him after he left school. My wife, Janet, and I had long been warned about that world: By professionals it was usually called “transitioning from high school.” By parents it was usually called “falling off the cliff.” After 21 years of early intervention programs for children with disabilities…there would be nothing. Or so we were told.
At 13, Jamie reported that he wanted to be a marine biologist. A very tall order, I thought; but he knew the differences between seals and sea lions, he knew that dolphins are pinnipeds, and he knew far more about sharks than most sixth graders. And despite his speech delays, he could say “cartilaginous fish” pretty clearly. Perhaps he could work at an aquarium?
Bérubé goes on to tell the story of Jamie’s education and upbringing, which includes the unfortunate descent from that lofty childhood dream to his current unemployment at age 22. “By the end of the year [at age 13]…Jamie had lowered his sights from ‘marine biologist’ to ‘marine biologist helper,’ Bérubé writes. “And by the end of eighth grade…when he was asked what he might do for a living when he graduated, he said dejectedly, ‘Groceries, I guess.’”
Despite testing at rather high levels for his disability, and despite having years of experience working in various low-wage and volunteer jobs, Jamie continues to struggle in his search for a career, even in areas like factory work, food service, or hospitality. (more…)